eHealth
Workshop - 25th-26th April 2013 Middlesex
University, London
eHealth -
legal, ethical and governance
challenges
You
are invited to participate in the
2013 eHealth workshop on Thursday
and Friday, 25th-26th
April 2013 at Middlesex
University, (Town Hall, Committee
Room 1), Hendon campus, London,
United Kingdom (see
travel information below). The
workshop isfree for
participants, but they are expected
to fund their accommodation and the
workshop dinner.
Theme
The
workshop will explore the
challenges for eHealth in the next years in the context
of the EU eHealth
Action Plan 2012-2020 and
taking into account : increased
patient involvement in
healthcare; the practical
arrangements needed to achieve
maximum benefit from research to
date; preserving data quality
and integrity; making use of
analysis techniques to exploit
opportunities offered by
semantics technology and ‘big
data’; and professional
responsibilities for
technologies in innovation,
implementation and support of
patients.
The
workshop will consider the issues
in terms of the law,
ethics, and governance, and
take further many ideas put
forward in the new edited book eHealth:
Legal, Ethical and Governance
Challenges (George
et al, 2013) as well as
encouraging new insights andeHealth agendas. Topics
will focus on current practices as
well as new challenges that may
emerge when systems and
technologies change.
Objectives
(i)to
explore up-and-coming challenges
for eHealth related to: patient
involvement and patient
responsibilities; data quality,
integrity and analysis (semantics,
big data); new service models
(such as ‘cloud’); emerging
technologies, practical issues
when implementing and applying
electronic health records, and
setting professional standards.
(ii)to
identify some of the
upcoming advances in eHealth
whether technological or
organisational, and to analyse and
assess their potential risks and
challenges in the context of the
law, ethics and governance.
(iii)to work
towards identifying a future set
of research questions in eHealth
fields as diverse as
organisational processes and
individual and institutional
behaviours, and particularly on
topics that are significant and
where answering such questions
might have a positive and
constructive effect.
Structure
The workshop will feature
presentations by keynote speakers,
practitioners, academics and
researchers . It will consist of a
series of plenary sessions and panels,
several of which will be handled in an
interactive way. View the draft
programme here: Programme
2013.
Speakers
Speakers confirmed for the workshop
include:
Frank
CUNNINGHAM, Health and
Well-being unit, European
Commission, Brussels. Trends in EU-US
dialogue/cooperative eHealth and
work with other parts of the
world
Malcolm
FISK, Co-Director, Age
Research Centre – Health Design
and Technology Institute, Coventry
University, UK. The Ethics of Telehealth
Services (A code of
practice).
Jasmine LEONCE – Consultant
Obstetrician, Lister Hospital,
Stevenage, Hertfordshire, UK.
The Challenges of Electronic
Health Records: A Doctor's
perspective
Deborah MASCALZONI, Researcher
at the Centre for Research Ethics
& Bioethics (CRB) at
Uppsala University, Sweden. Electronic dynamic
consent - patient-centric
experiences
Gurmit SINGH, School of
Education, Leeds University, UK. Electronic CPD
(eCPD) governance: A practice
theory view to improve impact
Peter SINGLETON, Director,
Cambridge Health Informatics,
Cambridge, UK.European Union
proposed Data Protection
Regulation and Health Data
Re-use.
Anthony
SOLOMONIDES,
Director of Clinical Research
Informatics Center for Clinical
and Research Informatics (CCRI),
Research Institute / NorthShore
University HealthSystem, Illinois,
USA. Comparing eHealth in the UK and US -
an overview
Rod TOOHER, Independent
Consultant and former UK Policy
Lead on eHealth, York, UK. Information
governance for eHealth
Call
for presentations
We would like to invite
participants interested in giving
a 15 min presentation to submit a
one-page summary/position
statement, giving an outline of
their presentation and its
relevance to the theme and
objectives of the workshop. Please email your
submissions before Monday 8th
April 2013 to:
diane.whitehouse[at]thecastlegateconsultancy.com.
Late submissions (up to 20th
April) may be considered by the
organising committee, subject to
the contents of the programme.
Schedule
The
workshop is expected to run from
midday on Thursday 25th April,
2013 to late afternoon on Friday
26th April, 2013. This timetable
will permit people to
travel while spending only one
night away from home. A detailed
programmed will be available
closer to the workshop date.
Please
Confirm Attendance Please
confirm your
attendance/participation at the
workshop before Friday 20th
April 2013, using the confirmation
form
Hotels in Hendon
Click here
for a list of suitable hotels in
Hendon, close to Middlesex
University. We suggest staying at Hendon Hall
subject to your budget.
Workshop
Organisers/Committee Ms. Diane Whitehouse -eHealth
Consultant(The Castlegate
Consultancy), Chair IFIP WG9.2 Dr. Penny Duquenoy -Principal
Lecturer, Middlesex University,
Chair - BCS ICT Ethics
Specialist Group Dr. Carlisle George - Principal
Lecturer, Middlesex University,
Barrister
Middlesex
University Hendon campus in
north London is located ten
minutes from the Northern Line
(Hendon Central) and Thameslink
rail line (Hendon Station),
either of which takes you to
Middlesex from central London in
under 30 minutes.
Hendon Town Hall is right next
door to the Hendon campus of
Middlesex University. It is ten
minutes' walk away from Hendon
Central, an
underground railway station on
the Northern Line. Click
here for information on
getting to Hendon Town Hall
Click here
to view the location of the
university via google maps.